Hello, life. I’m back.

A selfie taken in the morning sunshine at home on Aug. 5, 2014. ‘Betty,’ my wig, is retired and I’m enjoying my transition hairstyle. It’s nearly care-free and no blow drying means saved time.

A selfie taken in the morning sunshine at home on Aug. 5, 2014. ‘Betty,’ my wig, is retired and I’m enjoying my transition hairstyle. It’s nearly care-free and no blow drying means saved time.

This post had me pondering two headline alternatives to try to encapsulate my message. You see what I chose, but the close runner up was, “End construction zone; resume safe speed.”

What a summer this has been and what a journey life has shown me this last year.

In my last post here,  I recounted my special birthday in May. Then June 13, I began my reconstructive surgery. All went well without any issues. I had to limit my exercise to walking for the first three weeks. Since then, I have returned to the surgeon on a couple occasions for followup and some swelling. All is going as planned. I am back now to playing golf, running, cycling and all the other activities I enjoy.

By the way, I am no longer wearing Betty, my wig. My hair is grayish, short and a bit curly. Some new growth is still in the process of filling in, but all and all, it is at a great stage. Not having to worry about blow drying my hair has really spoiled me!

A few weeks ago my sister asked me to accompany her to the British Open. Deb offered to use her travel rewards points to pay for first class tickets and our hotel room. How sweet and thoughtful to offer this awesome trip to me. Well, of course I said yes. We stayed in London and traveled by train to the Open for a one-day visit. The entire trip was wonderful and to be able to share this experience with my sister was very special. (See photos.)

I am finally able to devote my full attention to my new start at Bridgeworth Financial, having recently celebrated my one-year anniversary there. I had just moved to my new career home at Bridgeworth in May 2013 when on June 13 I was diagnosed with breast cancer. Everyone was very supportive and I will always be grateful they stood alongside me on this journey. Work is going very well and I couldn’t be happier about my decision to join the Bridgeworth team.

So, more than a year later, here we are. I would say, all is almost back to normal in every sector of my life. I will continue to receive infusions thru October, to ensure success against my particular type of breast cancer.

Sometimes, I still cannot believe the experience and that this scenario really happened.

This Soulchanger.com blog has been an outlet that served several purposes – chief among them, efficiency in communicating highlights of my journey during periods when energy was scarce. In coming days, you can expect to see posts much less frequently here on the site, but hopefully, more individual interaction from me. As I continue to work my way back to normal, I would be happy to hear from you and catch up on things happening in your life.

But before I ramp down things here, I would like to thank Belynda again for all her incredible support! Also, my family as they all have been very special to me, and of course my friends who were there also with a text, visit or phone call. I especially would like to thank Vickey Williams, who has taken my words and photos for each post and constructed them into a fluent story via this blog.

If there is anyone you know who is struggling with breast cancer, please give them my name if they would like to talk. It is a scary finding and would be happy to help if I can. Lastly, please encourage a newly diagnosed woman to seek out a second opinion. I know in my case, I just wanted to have the surgery as quickly as possible. I was fortunate that a friend strongly encouraged me to seek a second opinion at UAB.

I’ll close out with a collage of London photos, highlighted by my selfie with golfer Sergio Garcia. Just more evidence that I’m a lucky girl.

My sister, Deborah, hosted me last month on a dream vacation to the British Open and sights of London. At top left is my selfie with Sergio Garcia. Other pros we were able to see up close included Tiger Woods and Tom Watson. Bottom row photos show Deb and I before the play Jersey Boys, on a Downton Abbey tour and Deb trying to figure how we could make off with the Ferrari parked outside our restaurant.

My sister, Deborah, hosted me last month on a dream vacation to the British Open and the sights of London. At top left is my selfie with Sergio Garcia. Other pros we were able to see up close included Tiger Woods and Tom Watson. Other bottom row photos show Deb and I before the play Jersey Boys, on a Downton Abbey tour and Deb trying to figure how we could make off with the Ferrari parked outside our restaurant.

Delayed gratification made for an even sweeter ride this birthday

Fresh from motorcycle training, here I am during my inaugural ride around a church parking lot yesterday. The bike had been in my garage for a year, due to the need to manage through the detour you know all too well. See the link to the video.

Fresh from safety training, here I am during my inaugural ride yesterday on my birthday. The bike had been parked in my garage for a year, due to the need to manage through a health detour you know all too well. See link below to a video of my ride.

What a birthday I celebrated this week! I had to tell you about it here.

One year ago we decided to get a new motorcycle with the hope that I would learn to ride.  As fate would have it, less than two weeks after getting the bike the phone call came with the biopsy report of my breast tissue.

Plans, dreams and hobbies were put on hold. Life’s central focus shifted to setting a path for sorting through diagnoses, treatments, surgeries and more. Through God’s grace, the latest tests show the most positive outcome possible, a PCR or “pathologic complete response.”

So this week, it was finally time to turn my attention back to the bike. For my birthday, Belynda paid my tuition to a  motorcycle safety class where I spent last weekend learning to ride. Unfortunately, the bike provided for my lesson was a very small motorcycle but I did learn the basics.

So yesterday, one year after its purchase, my motorcycle came out of the garage and for the first time I was ready to roll. It was very intimidating at first because of the difference in size compared with the much smaller model I had used in training. But with Belynda cheering me on and building my confidence, off we went. Here’s a short video.

My sister, Deb, had to be out of town for my birthday dinner last night at a neighborhood pizza spot, but arranged to have sent to the table a Scotch with a sweet note of good wishes.

My sister, Deb, had to be out of town for my birthday dinner last night at a neighborhood pizza spot, but arranged to have sent to the table a Scotch with a sweet note of good wishes.

As for other festivities of the day, there was breakfast out, dinner with friends and family, and finally good pals from Florida arriving for more fun over the next few days. My sister, Deb, had to be out of town on business but arranged to have a Scotch sent to the table with a message sending love and saying that Mom and Dad would be proud.

I had ordered wine a glass of wine so for a moment, with two glasses in front of me, it probably looked as if I was really celebrating.

A cousin fetched our out-of-town friends from the airport to join us at the restaurant and at one point he turned the aisle in the pizza joint into a dance floor and we took a spin to the applause of our fellow guests.

In more ways than one, yesterday was a sweet, sweet ride.  Happy birthday to me!

Even the serving staff and fellow diners got a kick out of our birthday celebration.

Even the serving staff and fellow diners seemed to get a kick out of our birthday celebration.

Both my optimism and my hair are growing

My hair's coming back and I am getting fully back to normal as well. You all remember meeting my friend Betty in the fall, with me in the photo upper right? She joins me only occasionally now. Betty's been a dear but I look forward to the one day soon when I'll no longer need her help at all.

My hair’s coming back and I am getting fully back to normal as well. You all remember meeting my friend Betty in the fall, with me in the photo upper right? She joins me only occasionally now. Betty’s been a dear but I look forward to the one day soon when I’ll no longer need her help at all.

Hi, everyone. In some ways, not so much has changed since I posted last time. But some little things are improving, and those add up to outcomes that are really big to me.

I’m back to my 6-mile run on Saturdays and I’m doing a little cycling too. I’m back to a complete, full day at work. Going to Costco, running errands — all the little things I pushed aside or left to others — are now mine again to do. They add up and I am so pleased to be able to again enjoy life to its fullest!

I continue to do well in all regards. Not that there aren’t distractions, such as sorting out medical bills.

Also, my hair is coming back. I am still wearing “Betty” ( my wig) when I have meetings and other big events. My nails still look bad and I am hoping  they will come along soon.

And I continue to receive an infusion every three weeks. Once again, it is called Herceptin and women who have the HER2-positive type of cancer continue to receive this infusion for one complete year.

My reconstruction surgery is scheduled soon and I hope to be winding this up by end of April.

An update on my surgery, recovery and my treatment going forward

Feeling positive on Jan. 14, just before my surgery.

Feeling positive on Jan. 14, just before my surgery.

Hello, everyone. It has been a little more than three weeks since my surgery and almost two months since my last chemotherapy so I am overdue for posting an update.

As you may remember, I had a mastectomy on Jan. 14. The surgery and reconstruction was smooth sailing. The drugs after surgery were really good and I did not have any problems.

A few hours after my surgery on Jan. 14.

A few hours after my surgery on Jan. 14.

Belynda stayed with me in the hospital the night after surgery. We were able to leave around 2 p.m. the following day. I fussed at her on the way home to be careful with hitting potholes and making sudden movements in the car.

I was feeling a little nauseous. However, I made it home fine and the recovery went very well.

I had two drains. My friends Pat and Laura had given me 2 camisoles with drain holders so that when I walked around in the days following surgery the drains had a place in a pouch.  Very clever and what a help!

Up and about in my hospital room, getting ready for the ride home.

Up and about in my hospital room, getting ready for the ride home.

I am feeling very good but still cannot do too much like working out or jogging. I can walk and have been doing this with some walks in the woods.

This past week I had a meeting with the radiologist about radiation therapy. The discussion centered on whether I needed it or not. She explained that I fall into a gray area. She said she would be OK if I had radiation and if I decided not to have it, she would be OK with that decision as well.

What a dilemma! There are side effects to radiation, as you know. Add to that the fact that  there was not much improvement to be had in lessening my chance of recurrence, I decided not to have radiation.

Another factor that impacted my personal decision: My pathology report following surgery.
I had a “pathological complete response,” which means that the chemo drugs did their  job. My path report from surgery showed zero cancer cells and my four lymph nodes they removed were clear.

Currently I am waiting on additional healing and further reconstruction.

But I am not totally off the hook. Due to the type of cancer I had — HER2-positive — I will get an infusion of a drug called Herceptin every three weeks. I will continue this until August. This infusion is not chemo and is said to have very little side effects! Yeah for this!

Here are some links with further details, if you are interested. The Mayo Clinic has some information here, and WebMD explains my particular type cancer here.

I wish for you a happy Valentine’s Day and thank you, as always, for your prayers and support.

A rocky end to 2013, but I’m energized, focused on the new year

Christmas lights are a big deal at my house, as these photos show. The day after Thanksgiving, friends with access to a bucket truck helped boost the wattage this year with some additional bulbs. At bottom left, you can see the wreath on the door and the tree on the stair landing. But the main photo at right gives you the view as you turn onto my street. The camel is a staple of our circle.

Christmas lights are big at my house, as these photos show. The day after Thanksgiving, friends with access to a bucket truck helped boost the wattage this year with some additional strands. At bottom left, you can see the wreath on the door and a tree on the stair landing add to the effect. But the photo at right gives you the view as you turn onto my street. The camel has become a staple of our neighborhood display.

Happy new year, everyone.  Today marks two weeks and five days since my last chemotherapy treatment, not that I am counting.

I have lots of good news to report. I  have started to feel my energy level return. I am now helping around the house and gladly cleaning up the kitchen, taking down Christmas decorations; actually getting back to being me!

I really appreciate the little things. Who would think that I could get excited about cleaning up the kitchen or feeding the dogs and such?  But it is true.

Oh, by the way, I had a bout of the flu. Type A, and it is nasty stuff. Please be careful.

It really made me weak and I lost additional weight. Two weeks ago today was the worst of it. I actually had to use a wheelchair when I went to Kirklin for the lab work. But my doctor put me on Tamiflu and got it turned around. I did spend part of Christmas in my pajamas under a blanket, which I hated, but my strength is coming back!

I usually take the flu shot but could not this year because of the chemo. Next year I’ll be sure to do so.

Lately, I can not seem to get warm and am cold a lot. So my new saying is “get moving!” When I can do this, it makes me feel better and more productive.

Also, I have started slowly getting back to elements of my exercise routine, which is a great joy for me. For the past several mornings I’ve put on my running clothes and gotten out and walked and jogged a little.

More in the good news department:  I have found relief from my rash finally, after another dermatology appointment last Monday with another steroid shot. The stinging and misery are subsiding. It has not gone completely, but I hope it is on its way out.  I also was dealing with mouth sores that I am happy to say they also are gone.

I have to give out a shout out to my sister, Debbie, who got me to doctors’ appointments when I had the flu and cooked wonderful things like macaroni and cheese, mashed potatoes,  casseroles, etc. She has been so sweet. Wonderful, really.

I still was able work in visits to family and dear friends. I’ve enjoyed a day here and there in Meridian, MS; and Franklin, TN, for example. I’ll close out 2013 in south Florida. During one of these visits on Saturday, I had my first glass of wine in who knows when and it went fine.

My surgery is set for Jan. 14, so I’m focusing on success there. Thankfully, all signs are pointing to my strength being fully recovered for that next adventure.

As always, I close with a feeling of deep gratitude.

 

 

The source of my determination and strength is my team

Well, Wednesday we wrapped up the chemotherapy at Kirklin. Final treatments are celebrated by ringing a bell, accompanied by a round of applause. The corkscrew at bottom right was a gift to mark the occasion and to help me look forward to the day when I can again enjoy a glass of vino.

Wednesday we wrapped up the chemotherapy at Kirklin. Final treatment visits are marked by the patient ringing a bell on the way out. The corkscrew at bottom right was a gift to mark the occasion and to help me look forward to the day when I can again enjoy a glass of good vino. (Photos: Belynda Adams)

I have to tell you about the big chapter that closed out Wednesday, as my final chemotherapy treatment went down as planned.  Join me in a virtual high five! Hurray!

It was a day of mixed feelings. Of course I was looking forward to wrapping up this phase of my care. But with two weeks between treatments, I was almost back to feeling normal. Even knowing it was the last time, it was hard to get back in that chair.

Here’s how it goes: I get in the chair and receive my pre-meds that help me fight nausea. Then my nurse rolls over and begins with the Adriamycin, pushing the red fluid in with a big, round syringe very slowly over 15 minutes.

To be honest, it always freaked me out a little. I never looked down to watch. So I’d ask her, “How are we doing now?”  Afterward came the Cytoxan, which by comparison was a breeze.

This week, going up the escalator in Kirklin for my pre-treatment labs, I had a moment of realization, “This is the last time! Wonderful!”

Because it was my last treatment, on Wednesday I was allowed to ring a brass bell by the door. A plaque alongside it says this:

“Ring this bell, Three times well, Its toll to clearly say;

This treatment’s done, My course is run, And I am on my way. – Irve Le Moyne.”

A footnote on plaque says “Soli deo gloria,” Latin for “Glory to God alone.”
Perfect.

People say to me, “How’re you doing this?” or “You seem so strong.”
To that I would say, it’s really a team that makes it work.

It has always been hard for me to receive. And early on in this journey, somebody told me “you need to allow that because people want to do it and it is a blessing to them.”

So I have done just that.  In doing so, I’ve opened myself up to a love so selfless, it takes my breath away. Thank you!

If you’ve kept up with my posts here, you know my sister, Deb, hosted Thanksgiving and I’ll be at her home again on Christmas afternoon. Another family member is hosting Christmas Eve.

Also in the category of those who I hope are receiving blessings of their own in return: My priest, who helped me begin this journey with the sacrament of healing, and other clergy friends Charles and Christine;  my therapist, Vicki Addaway; my trainer, Susan, who I’ve mentioned here before; at work, my Bridgeworth Financial family; and so very many dear friends.

So when I’m asked those questions, I think to myself, “That’s how I do it. All that.”
You give me courage. I am determined.

 

Thankful? You betcha.

My sister, Deb, hosted Thanksgiving this year and as you might expect, it was even more special than usual. A lovely table, a perfect bird, joking in the kitchen with family as we piled plates high with favorite foods; there were plenty of  "Hallmark moments" in a day made all the more meaningful by my beloved aunt and uncle being there to share it. That day and every day I give thanks for the family, friends coworkers and caregivers in my life whose support on this journey has meant so much to me.

My sister, Deb, hosted Thanksgiving this year and as you might expect, it was even more special than usual. A lovely table, a perfect bird, joking in the kitchen with family as we piled plates high with favorite foods; there were plenty of “Hallmark moments” in a day made all the more meaningful by my beloved aunt and uncle being there to share it. That day and every day I give thanks for the family, friends, colleagues and caregivers in my life whose support on this journey continue to mean so much to me. I hope your holiday was filled with  the joy of the season as well.

Thanksgiving takes on a new meaning this year

If you were to commit to writing all you were thankful for, where would you begin? (Photo by Valerie Kamikubo/Flickr. Used under a Creative Commons )

If you were to commit to writing all you were thankful for, where would you begin? (Photo by Valerie Kamikubo/Flickr. Used under a Creative Commons license. )

Well here it is again, the day before treatment. The timing is unfortunate but if it means getting past it, then I will joyfully walk in tomorrow for the third in what we  hope will be my final series of four chemotherapy sessions. Just one more remaining: Scheduled for Dec 11.

I feel great and last week I worked a normal week. It feels good to almost be myself again, and in a routine.

The only side effects to report from recent days would be the rash raising its ugly head again. It really never left but remained at bay until Friday. I had a mouth sore and was itching all over.

When you have irritations like this occur, you tend to get down to business in finding a solution. I have a special mouth wash that I started using three times a day. Then I began taking steroids to beat back the itching.  At night, it was Benadryl to help with sleep and  itching. Oh, and oatmeal baths.

So here it is Tuesday night and I think  I can report  the mouth sore is gone and the itching has diminished to a minimum.

My goal for Thursday, “turkey day” and the day after treatment, is to lay low until late afternoon. My aunt and uncle will be here to visit and we will go over to my sister’s house.

With Zofran  and steroids on board I should be OK if  a little weak. Friday is always better and in fact, I go to work on Fridays and work most of day. This Friday I will simply be with my family.

I feel truly blessed and thankful! This Thanksgiving takes on a new meaning.

A typical work day with my friend Betty

Preparing to leave the house with my friend Betty.

Preparing to leave the house one morning with my friend Betty.

Greetings from the midpoint in my treatment cycle for the Adriamycin and Cytoxen cocktail chemotherapy. That means two down, two to go.

The treatment occurs on Wednesday afternoons, you might recall. By last night I did not feel well so I went to bed early and with the assistance of a sleeping aid, I had a good night. I finally got out of bed at 8:45 this morning, which set a new record for me. I haven’t slept that late since I was a kid.

This morning was spent on the couch, answering emails and taking it easy. My biggest complaint is indigestion and Nexium is helping, along with my friend Zofran, which beats down the nausea. Knock on wood, I haven’t really suffered from nausea.

Mostly I just feel weak.

Following my last treatment, I felt like a new person by Friday. So I am hoping for the same outcome this time.

My train of thought is somewhat hampered today, so I will keep this short but it does appear I will have some sort of surgery (either lumpectomy or mastectomy) at around the end of year or early January. My physicians say I also may need some radiation because my tumor was so close to chest wall.

The good news of course is that I can use the past tense in reference to my tumor. As I mentioned in an earlier post here, my physicians say the chemo has resulted in 100 percent resolution of my mass; meaning the last MRI did not pick up anything! I further understand that at time of surgery if this is still the case, then I would have a 98 percent
likelihood that I should not expect a recurrence, and I would be “cured!” It is amazing how far treatment has come.

Enjoying breakfast out on Veterans Day.

Enjoying breakfast out on Veterans Day.

And while I might be a bit hampered today, know that not all days are like this.  Much of the last week I felt just fine. For example, Saturday morning I jogged for 2.5 miles and felt great. Veterans Day was a long and busy Monday for me. On Tuesday, I worked from 7:30 to 6 and briefly stopped by a jewelry party afterward.

Most days, I think I’ve also been able to hold onto my sense of humor. In that vein, I’ll share with you that I’ve nicknamed my wig “Betty.” Some days she joins me, some days she stays home.

As always,  thank you – each and every one – for your concern, support and prayers.

A chemo holiday, a beach trip and meeting Adria

OK, the photo quality isn't great, but the expressions made me want to share this memory from my getaway weekend in Destin. Belynda Adams and Jan Troncale helped make sure it was a relaxing few days for me.

OK, the photo quality isn’t great, but the expressions made me want to share this memory from my beach getaway last weekend in Destin. Belynda Adams and Jan Troncale helped make sure it was a relaxing few days for me.

[Update Oct. 31: Since the posting of these piece last night, I realized I neglected to report to you a major piece of news: I had an MRI last week that showed resolution of the spot where my cancer resided. There are still details with the report we want to clarify, but what is clear is that the drugs are working. We do know that this finding won’t change my immediate treatment plan. Further chemo and surgery are still on the horizon.

But for now, we’ll take the positive report and run with it! And again, thank you for your prayers of support.]

Well, I met Adria today, short for Adriamycin, my new chemotherapy drug. The red stuff caused an unusual sensation, leaving me warm inside.
Kinda reminded me of the feeling one has after a glass of bourbon. So far, so good.

It was great to have a week off from chemotherapy last week. I took the occasion of my “chemo holiday” to make a short trip to the beach with friends.
The time away was awesome. Relaxation, feeling better and seeing the Gulf.

But as I’ve mentioned before, I was anxious about Adria, as I hear she can be “testy.” At the Hinton home, we will treat her with respect and follow the rules so as to not get sideways with her. I expect that there will be complete harmony.

[Update: More than 24 hours after the dosage, I’m feeling tired and my legs feel heavy. I’m taking special care with what I eat, too. Last night it was chicken noodle soup; today it was a little cereal and then rice for lunch. After Saturday, the potential for nausea should decrease. At that point we will back off the Zofran and steroids I’m taking to help manage any side effects. We will see.]